Category Archives: Brain Trauma

The Endless Seizure Disorder

I reposted about Epileptic seizures, cause now I have four kids, four different seizure disorders.  WOW!

We have Multi Focal, the most scary, Generalized, Tonic and Absence seizures.

And yet?  Life goes on.

Life is not filled with doubt, worry, or anxiety about someone having a seizure, as I know some other parents, and, epileptics are.

Epilepsy does not rule our household in any way, shape or form.

I could say that Autism tries to rule, but we believe we are the parents, even though sometimes, I want to go sit and cry in a corner.

When I became a foster parent, I did not want to foster anyone with anything like this, but, just as your own biological kids, sometimes they come with hidden stuff that shows up later.

Epilepsy showed up with my first biological when she was about twelve or thirteen hitting puberty.  Looking back it may have been what they now call “The Alice In Wonderland Syndrome.”

Alice in Wonderland syndrome is a disorienting neuropsychological condition that affects perception. People experience size distortion such as micropsia, macropsia, pelopsia, or teleopsia. Size distortion may occur of other sensory modalities.”

That is the technical description but what my eldest daughter experienced, was distortion in my size and closeness to her, along with how loud I was speaking.  She would go from thinking I was a giant to a dwarf in these episodes, and always thought I was yelling, when, as frightened as I was, that certainly was not the case.  She seemed to outgrow it, but at forty-four says when she is tired sometimes she has a mild version of this.  Now SHE WAS SCARY!

So, after having my younger sets of twins (related by birth mom) for seventeen and fifteen years, the diagnosis of each twin helped diagnose the others.

The grand mals’ were not as we are led to believe.  Each child has different Grand Mal seizures.

The last diagnosis of absence seizures was only found because of my then sixteen year old having an “out of the blue” seizure described in my former post.

I researched, well googled, cause google knows everything, about having seizures while sleeping.   Suddenly my child who could not stop bedwetting became obvious, which led to me demanding an EEG which proved he was having absence seizures.

All this to say, you are never alone and there is always help.

I am always here to talk, help in anyway.

Your child may not have epilepsy, but, dang I can tell you that is the least of what I have overcome with fostering and adopting children.

More of that to come.

Do you have something that you are seeing or “feeling in your gut” about your foster child?

Go here.

If you would like to read my first book about how we became foster/adoptive parents go here

 

 

Miracles Do HAPPEN!!!!!

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I believe in miracles go here and  listen to this amazing song about ordinary miracles.

In my family ordinary, everyday miracles happen, because I believe.

I don’t even think about it, I just believe.

I could not have done that some seventeen years ago, but my life changed.

I had, HAD to, believe in ordinary, everyday miracles.  For my kids.

I am in Nashville right now.  I have a child, that is legally mine, who is a walking miracle.

I read up on google, who is your friend, today about his diagnosis.

He should not be alive, let alone, be walking or talking or being anything other than maybe in a vegetative state, or a slow, long, painful recovery of a very severely traumatized brain.

What I read.  An aneurism, a blood clot, a stroke, a trauma to his grey/white matter in his brain.  Top that off with a spleen trauma, deep lacerations to his left face, ear, hand, arm, and five different fractures to his back.

This is a walking miracle.  Four weeks later, he is talking, standing, walking, still a little scrambled in his memories vs his aspirations, but heck, even the hospital staff and doctors don’t get this.  He is God’s Miracle.

This child, or young man really, I just think of him as a child, came to me seven years ago because of another miracle in his life.

You see, he was adopted, but the adoption went sour, and south, in a very bad way.  The end result was he was the kid who escaped the authorities in both countries, Liberia and USA, and ended up in the interior of Rivercess.  He was westernized.  He couldn’t catch fish with his bare hands, or climb a coconut tree.  He suffered beyond what a child should.  He thought he deserved this.

I didn’t.  My amazing hubby didn’t either.  And we found him and brought him back. An amazing miracle.  How do you find a kid in the jungle in less than a day?  God.    This is the young man who has yet again suffered physically, and mentally.

When I heard the news, I never doubted he would be healed, fully, back to total mental and physical health.  I am watching that happen.

He will survive.  He will be full restored cognitively and physically.  He will have all of his memories, and full capacity of his abilities.

You see, our God reigns.  Supremely, undoubtedly, truthfully, justly, righteously, kindly, and knows everything.  Yup, everything.  He guides us, forgives us, loves us, and heals.  Mind, body, soul and spirit.  He is our creator of everything including life and death.  He decides, we don’t.  We only think we do.

Challenges are God breathed.  They are there for us to meet, rise up and move forward.a must place to visit while you're on-2
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When You Never Give Up

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I never give up.

When I know deep inside that I am supposed to do something, I do it.

My child Friday is like that.

He has a long story that no child should have to ever endure.

But he did, and he never gave up.  Neither did I.

Short synopsis.  He was adopted from a Liberian orphanage at around eight years of age.

He was sent back by his adoptive parents to Liberia five years later.

Illegal by anyone’s standards.

Lots of red tape, custody papers, a flight to get him and he came back.  Became a part of our family.  He is third from the left, in the front row, in the photo above.

Tough few years getting him educated, helping him through his fear, anger, resentment, abandonment issues, rejection and trying to teach him to love.

Still fighting the rules and the systems, he did get graduated and got his drivers license.  He was free!

He has “lived” his life over the last couple of years experiencing failure, tough times, hard decisions and finding his place.

He has kept in touch, especially in the moments where, he was living in his car in California and needing to get home, when he just needed to know I was there, the occasional comment on social media, but I knew where he was, and most importantly, he knew where I was.

Then shocking news.  He was in a serious car accident, barely hanging on to life for several days.  A “miracle” he was alive.  I had to choke back tears when I saw him.  On a breathing machine, his left ear swollen from being stitched back to his head, the intubation, the distortion from swelling, the tubes everywhere including the top of his head to relieve the fluid.

But, he is a fighter, and he has a purpose in this world.  I knew from the moment I heard that I would start fighting in the spiritual world for his total recovery.

I experienced his fight in the spiritual, and I knew he would not give up.  I had a peace, a peace that passes all understanding that he would be not just ok, but totally himself.

Brain trauma is a scary thing, he has a road ahead, but not one he will not conquer.

He is one state away from me, so I drive every week to see him.  Tomorrow I drive and I get to see him awake, just three weeks after this terrible accident.

If you would like to know his story you can buy my book, “Finding Friday”  here.

You can find his song, “Run To”  on my cd “Broken Hearts And Broken Wings” here.  These are songs related to fostering and adoption.

Sign up for my emails and you can follow his amazing progress!

And, p.s.  Please like my FB page “Finding Friday” here and “The Adoption Thing” FB page here.

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